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Illustration by Matt Chase
IN MARCH LAST YEAR, as I was leaving a medical appointment, a nurse handed me a small, leopard-print cosmetic case with a pink ribbon attached. “A gift from us.”
This is not the kind of gift one wants to receive. I had been diagnosed with breast cancer. It was a welcome-and-sympathy gift wrapped up in one. With two young children distance-learning at home, I had considered a wide range of maladies our family might encounter—from “Zoom fatigue” to learning loss to the coronavirus itself. But not cancer.
My unpreparedness for major illness meant that I had no primary care physician, no relationship with any of the major health systems in my area, and no access to paid leave.
All this despite the fact that I was a professional advocate for family-leave policies. During the last several years, nearly all my working hours were spent researching, writing about, and promoting more humane work and family policies. I have often made this case to employers and legislators: All workers, at some point in their lives, will experience illness, frailty, or the need to care for someone else. It is wiser to anticipate and honor this aspect of humanity than to ignore it.
Now, the human in question is me.
I had not prepared for an illness requiring rest and extensive treatment. Work—both that for which I earn a living and all that goes into raising children and managing a household—played a defining role in structuring my days. Needing to not work was barely imaginable.
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